I contacted her school to inform them of what was going on and the school nurse called me and when I told her the Doctor who is reviewing the EEG results is apparently highly regarded. She responded as if she just won the lottery she was so excited we are using this doctor.

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Hope all is well with your daughter Kevin ... Let us know what you find out.

The results show Rebecca is as the doctor says "healthy little monkey". She is not epileptic, but has to absolutely avoid flashing lights because she has photo convulsive seizure disorder. All in all, everything is okay.

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I'd say thats GREAT, Kevin!

As you know, it could have been a lot worse!
I'm really glad for you, my friend!!!

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The doctor gave us some drops to place inside her cheek if she has another seizure. The troubling part was when he said most seizures are over between 3 - 5 minutes and that I should wait until 3 minutes before giving her the magic drops inside her cheek that stop my little girl from convulsing and bring her back to normal. Okay, he didn't word it like that, but that's what I heard. The mere thought of made my face flush so quickly Rebecca and the doctor both knew I had an issue with this. What wouldn't? I mean, what parent is going to be 'ok' with knowing they can instantly make their child better and are fine waiting three minutes? I dunno, but he's the doctor and one of the most respected in the country in his field. So I defer judgment to him.

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Kevin, my questions would be- are there possible side effects of the medicine that makes it better if its not used too much?
Or maybe waiting allows the body to fight off the attack, making it better long term?
For example, my migraine medicine (imitrex) helps, but can cause problems with the heart. So if I can stand to ride it out without using it, it's better for me. So I only use it when it's so bad I can't stand it.
Maybe allowing her body a chance to fight it first is better for her.

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The only side effect to the medicine is the recipient gets very sleepy. The doctor says when a seizure lasts 30 minutes or longer, that's when it can do damage.

I will wait the 3 minutes, but that don't mean it's going to be easy and we're all hoping it never comes to that.

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I admit....it would be VERY hard for me to wait, too.
Hang in there, Kevin!
We are praying/pulling for you!

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Kevin-

Just saw this. Sorry to hear about Rebecca's seizure.

My wife has epilepsy. She's on medication that takes care of the seizures and has no restrictions on driving, etc. Basically, she lives a normal life.

My wife has had two seizures when I was present. The Dr's recommendation to let the seizure run it's course unless it starts going too long is consistent with advice my wife's Dr gave us.

First time my wife had a seizure, I called the hospital which sent an ambulance, etc. Normally, she is not aware at all during the seizure. No matter how bad it looked like to me, she was out of it. But the ambulance guys kept trying to wake her up out of the seizure, and she said it made her aware of what was going on and it was awful. She requested I not call them in the future.

I discussed it with her neurologist, and he said just let her sleep it off afterward, only call the ambulance if the seizure itself was causing physical harm (biting tongue, etc). I did that the second time, and it was much easier on my wife.

I am sorry to hear Kevin. If she has to avoid flashing lights I hope she is never stuck behind a snow plow. Those things just about set me and my wife off.
She should have some kind of a plan if she is driving and approaches emergency vehicles. (I know she is still too young to worry about that today.)

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