longtimefan
13 years ago
Well....The 2nd dr was thinking low B12- or thyroid issues..

Those results were normal..In fact had a whole bunch of blood work done, and all normal.

2 more mri's last night, neck and upper back so entire back and neck has been mri'd... Total of 4 mri in last 2 weeks..

Now waiting on DH's scheduler to get back with me to set up an appt with the specialist
dhpackr
13 years ago
Listen friend, I'm going give you some sound advice. It is tough to diagnose neurological issues. Do not get hung up on tagging your issues with a name tag. You will spend thousands of dollars, is it MS, MD, Parkinson, this that or the other thing.

For the most part they all are treated with a variety of drugs.

You have to find what works best for you.

You can spend thousands of dollars seeking a name tag. Once your disorder is named, guess what, nothing changes. There is no magic wand, magic pill, or magic therapy that is going to restore you to a 20 year old.

The best way to diagnose MS, is with a spinal tap. If you are setup for a spinal tap, you know where they are going. If it comes back positive, you are in one of the best clinics in the nation for MS.

Good luck!
So if you meet me Have some courtesy, Have some sympathy, and some taste
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longtimefan
13 years ago
Dont want a tag other then to treat it properly
longtimefan
13 years ago
New and odd symptom, or is it?

Fingers were extremely cold, wife said like I was holding ice cubes for a while...

Then about a hour later she said they were hot like they had a fever..

I am done with all this 😞
Zero2Cool
13 years ago
I'm no doctor, I stay far away as possible, but cold fingers sounds like poor blood circulation?
UserPostedImage
longtimefan
13 years ago
yup could be...but then hour later she said was like they had a fever
longtimefan
13 years ago
Back to work since Tuesday...Doing okay but feet hurt, horrible...Worse pain ever in my feet and I had surgery one left foot twice

My disability is still not paid..Might be another 2 weeks ( disability insurance I paid for) Thats going to be about 3 weeks pay and waiting 6 weeks for it..

Have appt with the specialist June 3

longtimefan
13 years ago
See Khatri!! Guy is awesome


Anyways, says the mri scan did show something but could been from all bad headaches I had or just a sign
I am getting older (prev nuero said really was nothing)

Khatri said I prob have transverse myelitis Transverse myelitis is a neurological disorder caused by inflammation across both sides of one level, or segment, of the spinal cord. The term myelitis refers to inflammation of the spinal cord; transverse simply describes the position of the inflammation, that is, across the width of the spinal cord. Attacks of inflammation can damage or destroy myelin, the fatty insulating substance that covers nerve cell fibers. This damage causes nervous system scars that interrupt communications between the nerves in the spinal cord and the rest of the body.


And sounds like I will be fine..

He does want to keep eye on me, so any slight change call him and come in..
Cheesey
13 years ago
Well, that's some great news!
has to be a load off your mind!
And i know what you mean with disability checks......i went through that when i first was pulled out of work by my doctor. By the time you get the checks, you can be so far in debt with rent and car payments, it's hard to ever catch up.
UserPostedImage
macbob
13 years ago
Alright, LTF! =d>

Glad to hear the good prognosis. Will continue to hope for things working out for the best.
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