I've read your post quite a few days ago, Dakota, but I didn't know what to post.
And I still don't.
At my age, I haven't had to deal with a whole lot of things like this. Nothing close to having your own daughter being diagnosed with something like this.
If there's one thing I've seen though, from Buckeye's nephew, to Dave's son, to Cheesey's heart surgery, it's that everyone here rallies around those that need it.
Although this is something that, I'm afraid, no one can help you with, come back when you feel that you need some support.
Stay strong, Dakota.