DakotaT
  • DakotaT
  • Select Member Topic Starter
13 years ago
How could I have forgotten to tell you all about this? We went to Rochester last week for Mia to have another MRI and see all of her doctors. The first thing was to have a reading of the MRI, which we found out excellent news. Her ventricles are back to normal size and what once was the tumor bed is now filled with brain fluid. She has perfect brain fluid flow now, so she basically got an A+ on that test.

Next we saw the Oncologist and Mia's bloodwork showed near normal counts on everything - so she now doesn't require any medication other than a mild sedative at bedtime that we will slowly wean her from.

The last doctor we saw was her Neurologist. She was very impressed with Mia's progress and told Julie and I that we could probably expect a 90% recovery of all motions and balance. I would have been happy with 80%, so now I'm really going to work with her over the winter to see if we can't get it even higher than 90%. Mia told me she's willing to work hard becuase she wants to go back to dancing next fall.

On the Friday before leaving, she had a really minor surgery to remove the IV port. I'm still kissing a little bald girl goodnight, but I think the whole point of the last 15 months is that I still get to kiss my daughter goodnight, and trust me, I know how fortunate I am to be able to do that. I wonder what age girls quit letting their Daddy's kiss them good night? That will be a sad day.

I've had something bothering for a while now with all this stuff with Mia. People keep telling Julie and Me what incredible people we are for dealing with this and I just don't see it that way. I don't think we did anything so many other people haven't done or would do if presented the dilemma. What I do know is that we are exhausted. And the other thing I know is that Mia has gone through hell. I'm pretty proud of this little girl I raised, well all three really, but Mia will always be a little more special to me, obviously.

Three more months and another MRI. Until then, thanks for caring about us.
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Zero2Cool
13 years ago
Forgive my ignorance, I'm not a Rourke'tionary, but what is "Oncologist"?
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DakotaT
  • DakotaT
  • Select Member Topic Starter
13 years ago

Forgive my ignorance, I'm not a Rourke'tionary, but what is "Oncologist"?

Originally Posted by: Zero2Cool 



An Oncologist is the doctor that administers the chemotherapy and monitors all the different blood counts. We were lucky enough to have a pediatric Oncologist here in Bismarck so that we didn't have to travel for each of the 9 rounds of chemo. The Bismarck Oncologist worked beneath the Oncologist at Mayo.

You're not ignorant Zero; Dr. Death is just special.
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Wade
  • Wade
  • Veteran Member
13 years ago
Great to hear the great news!

I heard once that the solution to fatigue is a blonde. So you should be back with lots of energy in no time.

Best,
W
And do not be conformed to this world, but be transformed by the renewing of your mind, that you may prove what is that good and acceptable and perfect will of God.
Romans 12:2 (NKJV)
4PackGirl
13 years ago
read all about it on her caring bridge site. couldn't be more excited for all of you!

for fuck's sake dude - learn to accept a damn compliment. ;)
we're proud of you because you handled this nightmare in a way that none of us are sure we could.

love ya you hard headed know it all pain in the ass!!!
Nonstopdrivel
13 years ago
I have endless respect for pediatric oncologists. I am taking a Biology of Cancer class this semester (actually, I am supposed to be studying for an exam at this moment) and I find it pretty depressing reading about cancer for so many hours a week. I can't imagine working around that for hours a day and years on end. (I shouldn't jinx myself like that -- now I will end up doing a residency in this stuff.)

It's obvious you have given that girl some amazing genes, Troy, not to mention an indomitable will to live. The recovery she has made is nothing short of remarkable. It has been an inspiration to me, and I am sure everyone else here, watching you conquer -- together -- this dark specter that has hung over your family for so long.
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Formo
13 years ago


It's obvious you have given that girl some amazing genes, Troy, not to mention an indomitable will to live. The recovery she has made is nothing short of remarkable. It has been an inspiration to me, and I am sure everyone else here, watching you conquer -- together -- this dark specter that has hung over your family for so long.

Originally Posted by: Nonstopdrivel 



Well spoken.
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Thanks to TheViking88 for the sig!!
macbob
13 years ago
Very glad to hear Mia's great news. Woo hoo! =d> [aiee] =d>

And couldn't disagree with a single thing in 4PackGirl's description of you...
Since69
13 years ago
So glad to hear this good news! Congratulations to you and Mia both!
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