How could I have forgotten to tell you all about this? We went to Rochester last week for Mia to have another MRI and see all of her doctors. The first thing was to have a reading of the MRI, which we found out excellent news. Her ventricles are back to normal size and what once was the tumor bed is now filled with brain fluid. She has perfect brain fluid flow now, so she basically got an A+ on that test.
Next we saw the Oncologist and Mia's bloodwork showed near normal counts on everything - so she now doesn't require any medication other than a mild sedative at bedtime that we will slowly wean her from.
The last doctor we saw was her Neurologist. She was very impressed with Mia's progress and told Julie and I that we could probably expect a 90% recovery of all motions and balance. I would have been happy with 80%, so now I'm really going to work with her over the winter to see if we can't get it even higher than 90%. Mia told me she's willing to work hard becuase she wants to go back to dancing next fall.
On the Friday before leaving, she had a really minor surgery to remove the IV port. I'm still kissing a little bald girl goodnight, but I think the whole point of the last 15 months is that I still get to kiss my daughter goodnight, and trust me, I know how fortunate I am to be able to do that. I wonder what age girls quit letting their Daddy's kiss them good night? That will be a sad day.
I've had something bothering for a while now with all this stuff with Mia. People keep telling Julie and Me what incredible people we are for dealing with this and I just don't see it that way. I don't think we did anything so many other people haven't done or would do if presented the dilemma. What I do know is that we are exhausted. And the other thing I know is that Mia has gone through hell. I'm pretty proud of this little girl I raised, well all three really, but Mia will always be a little more special to me, obviously.
Three more months and another MRI. Until then, thanks for caring about us.