DakotaT
  • DakotaT
  • Select Member Topic Starter
13 years ago
How could I have forgotten to tell you all about this? We went to Rochester last week for Mia to have another MRI and see all of her doctors. The first thing was to have a reading of the MRI, which we found out excellent news. Her ventricles are back to normal size and what once was the tumor bed is now filled with brain fluid. She has perfect brain fluid flow now, so she basically got an A+ on that test.

Next we saw the Oncologist and Mia's bloodwork showed near normal counts on everything - so she now doesn't require any medication other than a mild sedative at bedtime that we will slowly wean her from.

The last doctor we saw was her Neurologist. She was very impressed with Mia's progress and told Julie and I that we could probably expect a 90% recovery of all motions and balance. I would have been happy with 80%, so now I'm really going to work with her over the winter to see if we can't get it even higher than 90%. Mia told me she's willing to work hard becuase she wants to go back to dancing next fall.

On the Friday before leaving, she had a really minor surgery to remove the IV port. I'm still kissing a little bald girl goodnight, but I think the whole point of the last 15 months is that I still get to kiss my daughter goodnight, and trust me, I know how fortunate I am to be able to do that. I wonder what age girls quit letting their Daddy's kiss them good night? That will be a sad day.

I've had something bothering for a while now with all this stuff with Mia. People keep telling Julie and Me what incredible people we are for dealing with this and I just don't see it that way. I don't think we did anything so many other people haven't done or would do if presented the dilemma. What I do know is that we are exhausted. And the other thing I know is that Mia has gone through hell. I'm pretty proud of this little girl I raised, well all three really, but Mia will always be a little more special to me, obviously.

Three more months and another MRI. Until then, thanks for caring about us.
UserPostedImage
Zero2Cool
13 years ago
Forgive my ignorance, I'm not a Rourke'tionary, but what is "Oncologist"?
UserPostedImage
DakotaT
  • DakotaT
  • Select Member Topic Starter
13 years ago

Forgive my ignorance, I'm not a Rourke'tionary, but what is "Oncologist"?

Originally Posted by: Zero2Cool 



An Oncologist is the doctor that administers the chemotherapy and monitors all the different blood counts. We were lucky enough to have a pediatric Oncologist here in Bismarck so that we didn't have to travel for each of the 9 rounds of chemo. The Bismarck Oncologist worked beneath the Oncologist at Mayo.

You're not ignorant Zero; Dr. Death is just special.
UserPostedImage
Wade
  • Wade
  • Veteran Member
13 years ago
Great to hear the great news!

I heard once that the solution to fatigue is a blonde. So you should be back with lots of energy in no time.

Best,
W
And do not be conformed to this world, but be transformed by the renewing of your mind, that you may prove what is that good and acceptable and perfect will of God.
Romans 12:2 (NKJV)
4PackGirl
13 years ago
read all about it on her caring bridge site. couldn't be more excited for all of you!

for fuck's sake dude - learn to accept a damn compliment. ;)
we're proud of you because you handled this nightmare in a way that none of us are sure we could.

love ya you hard headed know it all pain in the ass!!!
Nonstopdrivel
13 years ago
I have endless respect for pediatric oncologists. I am taking a Biology of Cancer class this semester (actually, I am supposed to be studying for an exam at this moment) and I find it pretty depressing reading about cancer for so many hours a week. I can't imagine working around that for hours a day and years on end. (I shouldn't jinx myself like that -- now I will end up doing a residency in this stuff.)

It's obvious you have given that girl some amazing genes, Troy, not to mention an indomitable will to live. The recovery she has made is nothing short of remarkable. It has been an inspiration to me, and I am sure everyone else here, watching you conquer -- together -- this dark specter that has hung over your family for so long.
UserPostedImage
Formo
13 years ago


It's obvious you have given that girl some amazing genes, Troy, not to mention an indomitable will to live. The recovery she has made is nothing short of remarkable. It has been an inspiration to me, and I am sure everyone else here, watching you conquer -- together -- this dark specter that has hung over your family for so long.

Originally Posted by: Nonstopdrivel 



Well spoken.
UserPostedImage
Thanks to TheViking88 for the sig!!
macbob
13 years ago
Very glad to hear Mia's great news. Woo hoo! =d> [aiee] =d>

And couldn't disagree with a single thing in 4PackGirl's description of you...
Since69
13 years ago
So glad to hear this good news! Congratulations to you and Mia both!
UserPostedImage
Similar Topics
Users browsing this topic
    Fan Shout
    Zero2Cool (21h) : Seems some are flocking to BlueSky and leaving Tweeter. I wonder if BlueSky allows embeded lists
    beast (12-Nov) : He's a review guy
    Zero2Cool (12-Nov) : Jordy Nelson is still in the NFL.
    Zero2Cool (11-Nov) : Ok, will do.
    wpr (11-Nov) : Kevin, donate it to a local food pantry or whatever she wants to do with it. Thanks
    wpr (11-Nov) : Kevin,
    Zero2Cool (11-Nov) : Wayne, got your girl scout order.
    dfosterf (11-Nov) : I believe Zero was being sarcastic
    dfosterf (11-Nov) : Due to that rookie kicker Jake Bates that Zero said "he didn't want anyway". 58 yarder to tie the game, 52 yarder to win it. In fairness,
    Mucky Tundra (11-Nov) : Lions escape with a win
    Mucky Tundra (11-Nov) : and now Goff looking better
    Mucky Tundra (11-Nov) : Goff with ANOTHER INT
    Mucky Tundra (11-Nov) : and now Stroud throwing INTs
    Mucky Tundra (11-Nov) : Goff having an ATROCIOUS game
    wpr (11-Nov) : Happy birthday Corps. Ever faithful. Thanks dfosterf.
    Mucky Tundra (10-Nov) : stiff armed by Baker Mayfield for about 5-7 yards and still managed to get a pass off
    Mucky Tundra (10-Nov) : Nick Bosa
    wpr (8-Nov) : Jets are Packers (L)East
    Zero2Cool (8-Nov) : Jets released K Riley Patterson and signed K Anders Carlson to the practice squad.
    wpr (8-Nov) : Thanks guys
    Mucky Tundra (7-Nov) : Happy Birthday wpr!
    Zero2Cool (7-Nov) : Anders Carlson ... released by 49ers
    dfosterf (7-Nov) : Happy Birthday!😊😊😊
    wpr (7-Nov) : Thanks Kevin.
    Zero2Cool (7-Nov) : Happy Birthday, Wayne! 🎉🎂🥳
    beast (7-Nov) : Edge Rushers is the same... it's not the 4-3 vs 3-4 change, it's the Hafley's version of the 4-3... as all 32 teams are actually 4-2
    Zero2Cool (6-Nov) : OLB to DE and player requests trade. Yet folks say they are same.
    beast (5-Nov) : In other news, the Green Bay Packers have signed Zero2Cool to update their website 😋 jk
    beast (5-Nov) : Might just re-sign the kicker we got
    beast (5-Nov) : Are there any kickers worth drafting next year?
    Zero2Cool (5-Nov) : Preston Smith for Malik Willis
    Mucky Tundra (5-Nov) : Getting a 7th rounder from the Stillers
    Zero2Cool (5-Nov) : At least we get 7th round pick now!! HELLO NEW KICKER
    Mucky Tundra (5-Nov) : Steelers getting a premier lockdown corner!
    Zero2Cool (5-Nov) : Packers are trading edge rusher Preston Smith to the Pittsburgh Steelers, per sources.
    Mucky Tundra (5-Nov) : Preston Smith traded to the Steelers!!!!
    Zero2Cool (5-Nov) : CB Marshon Lattimore to Commanders
    Zero2Cool (5-Nov) : Bears are sending RB Khalil Herbert to the Bengals, per sources.
    Zero2Cool (5-Nov) : ZaDarius Smith continues his "north" tour.
    Zero2Cool (5-Nov) : Let the Chiefs trade a 5th for him
    Zero2Cool (5-Nov) : Nearing 30, large contract, nope.
    Martha Careful (5-Nov) : any interest in Marshon Lattimore?
    Zero2Cool (4-Nov) : What does NFL do if they're over cap?
    Mucky Tundra (4-Nov) : They've been able to constantly push it out through extensions, void years etc but they're in the hole by 72 million next year I believe
    hardrocker950 (4-Nov) : Seems the Saints are always in cap hell
    Mucky Tundra (4-Nov) : Saints HC job is not an envious one; gonna be in cap hell for 3 years
    Mucky Tundra (4-Nov) : Dennis Allen has now been fired twice mid-season with Derek Carr as his starting QB
    Zero2Cool (4-Nov) : Kuhn let go
    beast (4-Nov) : I wonder if the Packers would have any interest in Z. Smith, probably not
    Zero2Cool (4-Nov) : Shefter says Browns and Lions will figure out how to get a deal done for Za'Darius Smith..
    Please sign in to use Fan Shout
    2024 Packers Schedule
    Friday, Sep 6 @ 7:15 PM
    Eagles
    Sunday, Sep 15 @ 12:00 PM
    COLTS
    Sunday, Sep 22 @ 12:00 PM
    Titans
    Sunday, Sep 29 @ 12:00 PM
    VIKINGS
    Sunday, Oct 6 @ 3:25 PM
    Rams
    Sunday, Oct 13 @ 12:00 PM
    CARDINALS
    Sunday, Oct 20 @ 12:00 PM
    TEXANS
    Sunday, Oct 27 @ 12:00 PM
    Jaguars
    Sunday, Nov 3 @ 3:25 PM
    LIONS
    Sunday, Nov 17 @ 12:00 PM
    Bears
    Sunday, Nov 24 @ 3:25 PM
    49ERS
    Thursday, Nov 28 @ 7:20 PM
    DOLPHINS
    Thursday, Dec 5 @ 7:15 PM
    Lions
    Sunday, Dec 15 @ 7:20 PM
    Seahawks
    Monday, Dec 23 @ 7:15 PM
    SAINTS
    Sunday, Dec 29 @ 12:00 PM
    Vikings
    Saturday, Jan 4 @ 11:00 PM
    BEARS
    Recent Topics
    15h / Around The NFL / Mucky Tundra

    16h / Green Bay Packers Talk / civic

    23h / Green Bay Packers Talk / beast

    12-Nov / Featured Content / Zero2Cool

    11-Nov / Green Bay Packers Talk / beast

    11-Nov / Green Bay Packers Talk / bboystyle

    9-Nov / Green Bay Packers Talk / joepacker

    8-Nov / Green Bay Packers Talk / buckeyepackfan

    6-Nov / Green Bay Packers Talk / Zero2Cool

    6-Nov / Green Bay Packers Talk / Zero2Cool

    5-Nov / Green Bay Packers Talk / Mucky Tundra

    5-Nov / Green Bay Packers Talk / Zero2Cool

    5-Nov / Featured Content / Zero2Cool

    5-Nov / GameDay Threads / Cheesey

    5-Nov / Green Bay Packers Talk / Martha Careful

    Headlines
    Copyright © 2006 - 2024 PackersHome.com™. All Rights Reserved.